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Awareness & Action

As well as helping you keep informed about your cancer, another of our key objectives is campaigning for change - for a better future and better outcomes for patients with BRAF-Mutated Bowel Cancer.

 

There are two aspects to successful campaigning - awareness and action.

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Awareness

In our awareness work, we've been featured in lots of press both local and national. We've appeared (twice) on Channel 4's 'Stand Up 2 Cancer' and on radio shows and podcasts.  You can read some of the press articles that we've featured in below.​

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Action 

On the action front, we are working with charities, MP's, other campaign groups and even NICE and beyond to make sure that everyone who has the ability to change things knows about BRAF-Mutated Bowel Cancer. Click here for more information on who we are working with to move the dial for BRAF patients in the UK.

Winning the Campaign for Avastin

Read Anna Bennett and Emily Georghiou's interview with the Daily Mail on achieving NICE approval for access to Bevacizumab (Avastin) alongside Lonsurf for third line treatment for metastatic BRAF-Mutated bowel cancer

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Don't Ignore Symptoms in Women

Read Emily Georghiou's interview with The Telegraph on her symptoms having been ignored and how she is campaigning for iron-defficiency anaemia to be investigated in younger women, when it is typically put down to being female and menstruating.

Young & Terminal Cancer

Read Mark Butcher's interview with BBC News on how he was diagnosed with terminal cancer despite having no symptoms.

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Better Access to Emerging Drugs

Read Clare Mariconda's interview with the Daily Mail on getting better access to new drugs to combat BRAF bowel cancer

Take The Young Seriously!

Read Helen Canning's interview with The Independent on struggling to get a BRAF bowel cancer diagnosis because of her age.

NHS Testing Failures

Read Rebecca Condie and Helen Canning's interview with the Daily Mail on missed testing opportunities and how testing delays are causing premature and unnecessary deaths in BRAF bowel cancer cases.

A Plea for Better
Treatment Options

Read Andy Harrison, Clare Mariconda and Helen Canning's interview with The Independent on getting better care and treatment for BRAF bowel cancer.

The Fight for Avastin

Read Helen Canning's interview with Suffolk News, where she details the fight for BRAF bowel cancer patients to get access to life-prolonging drugs like Avastin (Bevacizumab).

Having to Go Abroad for Treatment

Read Glenn Utteridge's interview with Northants Live about being forced to raise money via crowdfunding to seek better novel treatment abroad.

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Media

If you are a journalist or content creator and want to contact us for commentary, point-of-view, cancer experience or real life stories, please email us at:

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Breaking BRAF is a UK-based community group, providing patient support and campaigning on key topics that help people with BRAF-mutated bowel cancer. Any monies we raise through membership and fundraising goes directly into providing education and patient information to better support our community.

Get in touch with us by email at

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